Hey, hey, hey! I hope you are all enjoying reading these awesome stories from a few local families who celebrate Down Syndrome Awareness Month! I have another great story to share with you today from one of my good friends, Stephanie.
Here is what she wrote about her youngest daughter, Isabella:
October is a special time of the year for our family, not only is it Down Syndrome Awareness, but it is also the month that Isabella was born in. Isabella, or Izzy for short, was supposed to be a December baby, but due to some pregnancy complications, not related to her having Down syndrome, decided to come when I was 7 months pregnant with her weighing a whole 3 lbs and 15 inches long.
We found out Isabella could possibly have Down syndrome when I was about 5 months pregnant. We found out she did have a heart defect that would require her to have open heart surgery within the first 6 months of life. The type of congenital heart defect she was diagnosed with is called a complete AV Canal. We were told that this type of heart defect is seen in a higher percentage of babies born with Down syndrome. We were in the doctor's office when we found this out, and we were left in a room for about 5 minutes to gather our thoughts and then taken into the geneticist's office. I was so confused as to why we were in there. It hadn't hit me that the geneticist was implying that my unborn baby could have Down syndrome. She started talking about options: termination, adoption, meeting other families that have a child with Down syndrome, having an amniocentesis to confirm the diagnosis. Then she mentioned having a free cell DNA blood test that could possibly predict if I was at high risk or low risk for having a child with Down syndrome. Still, I was so confused, why were they still talking to me about Down syndrome? There was no way in the world that I could have a child with Down syndrome. I was 29 at the time. Doesn't this only happen to older women? Or so I thought at the time.
About a week later, I received a call from the geneticist, stating she had received my blood test results...and it showed I was at high risk of having a child with Down syndrome. My heart dropped... and it was a 95% chance the baby would have it, the geneticist said because of her type of heart defect. You dream about this child that you're going to have and then those dreams are just ripped away from you. There was a grieving process I had to allow myself to go through to truly appreciate the little girl I have today.
Isabella has shown and proven that having Down syndrome is NOT disability. She is not disabled, she is not handicapped, and she sure is not the "r"word. But I will tell you what she is: she is a 2 year old, just like any 2 year old. She pushes boundaries, she can walk, she can communicate with words and signs, she plays with her baby dolls, she laughs and smiles, she has tantrums and gets put in time out, she can climb, she can run, she rides horses every week, she feeds herself, she adores her older sister Allie, and most importantly she loves unconditionally.
For this Down Syndrome Awareness Month, I encourage people to ask about what they don't know about Down syndrome. Believe me, I was clueless when we were told about her diagnosis, and now I enjoy when people ask me questions because it is spreading awareness and I want people to know about Isabella and what she is capable of doing!
Stephanie, thank you so much for sharing your story. I agree with you- Isabella is capable of SO much. She is able, she is beautiful, she is amazing. Happy Down Syndrome Awareness Month, and happy almost birthday to your beautiful girl!
Happy Monday, everyone! Here is another post to help celebrate Down Syndrome Awareness Month! I hope you enjoy it!
The handsome young man pictured below is Johnny, and the poem is from his mother, Cynthia. It was a pleasure getting to know them. Johnny had a great time taking photos, and he even sang for me! I was honored! I hope to see them again very soon!
I see as you pull your child away as he approaches
I hear your remarks as my son tries to interact with your child
I see as your child sees his innocence
My invisible child is now a man
He sees as you pull your child away as he approaches he smiles and steps back
He hears as teenagers and adults won't take the time to speak with him
He smiles and quotes facts about music, movies and life
He hears when the world snickers at his existence
He smiles brighter, forgives faster, and loves deeper
He is segregated from your society
Thriving in his own world
Thank you, Cynthia, for sharing with me. It meant the world to me! And Johnny, always remember, the things that make you different are what makes you beautiful. <3
Ooooh October, my favorite month of the year! It is not only my favorite because of the changing leaves and the crisp air, but also because it is Down Syndrome Awareness Month! Down Syndrome Awareness Month provides an opportunity for spreading awareness about what Down syndrome is and how people with Down syndrome bring such beauty to this world. My son Logan, was born with Trisomy 21 ( a form of Down syndrome) and I would not trade him for anything. He has given me such a wonderful outlook on my own life, and he has taught me so much. I celebrate being a mom to him and my other son, Clark, every single day.
This year, for Down Syndrome Awareness Month, I thought it would be neat to hear stories and experiences from families in our community who have a family member or family members with Down syndrome. I will be sharing 1-2 stories per week all month featuring these families and individuals. I hope you enjoy their stories as much as I do! Taking this project on has absolutely been one of the highlights of my year.
And now, without further ado, I present to you Kaaren's story about her son, Dane.
My name is Kaaren. I am going to share a snippet of my life with my miracle child whose name is Jackson "Dane." I had fertility problems, and I had gone through treatment. I was told by the fertility specialist that I had a 5% chance of getting pregnant with my own eggs. Well, a year after stopping fertility treatment, I got pregnant. Dane fell into that 5% chance, hence him being my miracle child.
I chose not to have amniocentesis because I knew my risk for my age for having a child with Down syndrome, and I absolutely didn't want to chance a miscarriage. I had an easy pregnancy, and I loved being pregnant. It wasn't until about 28 weeks, when the perinatologist picked up two anomalies on the 3D ultrasound that I knew something would be different. I am a medical provider, so I knew then that my child most likely would have Down syndrome. Again, amniocentesis was suggested and I declined.
Dane entered the world when I was 35 weeks along. He spent the first 3 weeks of his life in the NICU. He had surgery on his intestines for duodenal atresia. He also had a seizure disorder. We were blessed that he did not have any heart problems.
Fasting forward. Dane received physical therapy and occupational therapy from about 2-3 months on with an early intervention program. I am grateful for Lucy, Dane's PT, who was honest about how long it might take for Dane to go through the typical milestones of rolling, sitting, crawling, to walking. Dane didn't walk until after his sixth birthday. Lots of patience, practice, and serious perseverance. He was born with really low muscle tone, and his muscles just weren't ready until age 6 for him to be physically ready to walk on his own. I remember crying tears of joy the first time he took his first few steps on his own.
Getting Dane to transition from a bottle to a sippy, and potty trained have been our biggest hurdles. And yes, it can be frustrating. I can be honest and tell you that I am sick of changing diapers. But, in a moment of frustration, I can stop and reflect and remember thinking he might not ever walk. Dane will accomplish these hurdles, but when he is physically ready to do so. Repetition is all we can do.
Dane has been treated like any other baby and child in our family. Lots of bonding and love. I have had people say to me that I should have another child so that I would have a "normal" kid. Completely offensive, implying Dane is less than. Down syndrome, let alone any other diagnosis of special needs doesn't equate to less than as a human. Look at my child first and his diagnosis second. Dane has taught me how to slow down, and enjoy life. I wouldn't change a thing about my child. He is a ray of sunshine with a sassy personality.
Many thanks to Kaaren, for sharing her story. She is an amazing mom, and Dane is incredible. This world is a better place with Dane in it! <3
This weekend we took a day trip to the La Cueva Raspberry Farm, which is a few hours from where we live. We took my mom and step-dad's RV, which meant we had plenty of space. It was a beautiful, enjoyable, and relaxing drive. When we got there, it had just started raining, so we decided to go ahead and have some lunch before setting off to pick raspberries. The rain was very refreshing, and it helped to cool everything off nicely. The cool weather, the gorgeous setting, and spending time with my mom, step-dad, husband, and the boys made it a day to remember. Hopefully we will go back every year!
Logan thought picking raspberries was the best thing EVER! He was so excited and so focused on picking the red ones!
Clark, proud to be picking raspberries!
He would fall in the mud, then pick a berry and eat it...he was covered in mud by the end!
"Wherever you go, go with all your heart." ~Confucius
I suppose bugs come as part of the territory when you are a mom of two little boys. It is amazing how they find bugs EVERYWHERE! My older son especially loves to capture them, hold them, and play with them (well, most of them). I suppose it should be no surprise then, that I have found myself figuring out how to capture them with my camera! As much as they give me the heebie-jeebies, I honestly have found that I quite enjoy the challenge of capturing them from behind my lens. Here are a few....I hope you enjoy!
He's sorta cute, right?
Does anyone know what kind of bugs these are?
Even though I never in a million years would have thought I would want to see some of these creatures up close, I have been blown away by how intricate and beautiful they really are. And better yet, like I said before, the boys love checking them out too, so it is a win-win. Seeing beauty in all things... something I hope to teach my boys, and something I strive for myself.
Who here is hanging on to every last bit of summer? You had such a great summer and wish you had documented it? You were hoping to show off that adorable outfit on your child/ren, and it won't fit them next summer? I think you have found a mini session that is right for you! These mini sessions were designed to capture the essence of summer, before the weather gets cold, and before the leaves change. I have a beautiful location in mind, and the weather should be great (hopefully!). If you are interested, please contact me via this page http://www.jenniferwarrenphoto.com/contact.html In addition, I will be doing a giveaway, so stay tuned!
Fresh picked wildflowers, a home-made dress, smiles, and pouring rain helped make up Sarah and Andrew's special day. Here are some of my favorites from Sarah and Andrew's wedding that took place on July 6th.
All smiles as she is getting dressed.
Witnessing the first time Andrew saw Sarah in her dress was such a special moment. I feel so honored to have witnessed this.
About ten minutes before the ceremony was scheduled to begin, it started POURING! It was totally crazy how much rain there was! For this reason, the ceremony was moved inside.
First kiss as husband and wife!
Andrew made the cake!
I had so much fun photographing this wedding! It is always an honor to witness true and deep love that is shared between two people. Thank you, Sarah and Andrew for having me document your special day! Congratulations!
I had a great time working with Mike! In fact, this was not the first time we have worked together. We used to work together as music teachers, teaching elementary general music. We also worked together teaching at the UNM Music Prep School. Mike spent 18 years there, teaching marimba classes. I have had the honor and privilege of knowing Mike and his family for quite a few years now, so naturally I was so excited when he asked me to take these photos of him with his Marimba. We agreed that Old Town would be a great location for us to set up, and I believe it really did make for some wonderful shots. I hope you enjoy them!
Music has always been my very first love, so I really enjoyed capturing these moments and hearing Mike play a bit in the process.
Mike plays music from Mexico and Central America on his marimba, which is an authentic marimba that was hand-made in Chiapas, Mexico. I loved hearing about this marimba, it was super interesting!
Again, this was a fun session.- thank you, Mike, for trusting me with your photos! I am always so grateful and happy to be a part of these moments with people. I love helping capture moments that are special-whether they are big or small. I love having a chance to visit with people and hear about the happenings in their lives, it is so fun!
I hope some of you will take a moment and check out Mike's Facebook page, Marimba Anaya (https://www.facebook.com/Marimba-Anaya-450108905719904/). He is available to play at weddings, dinners, receptions, banquets, private parties, community fiestas, farmers/growers markets, and other special occasions.
Until next time,